Sarah Ford | September 16, 2014

Living with Blood Cancer

By Stephanie Cindric

I was diagnosed with essential thrombocythemia (ET) at age 16 after collapsing in my high school cafeteria. At that time, lab results showed I had a platelet count of over 1 million and my world was forever changed. During the last 18 years, I have traveled along the highs and lows of platelet counts, treatments, and the emotions of this blood cancer. ET has created some of the worst fears I’ve had in my life, but has also given me more purpose than I could have hoped for at a young age. One of the most difficult aspects of dealing with this diagnosis was the feeling of isolation I encountered with having an “orphan disease.” When ET entered my life, there was limited funding and attention towards myeloproliferative neoplasms (MPNs). As a board member of the MPN Research Foundation, I am very proud of the research and patient support that the foundation has made possible over the years. The research and knowledge has come a long way since I was diagnosed and our work continues in order to further understand and develop a cure for MPNs.

>> Continue Reading

>> Support National Organization for Rare Disorders (NORD)

Get Resources and Insights Straight To Your Inbox

Explore More Articles

Women’s Health Month

April 8, 2024

May is Women’s Health Month, a time when we focus on the importance of taking care of ourselves and our health. This month is an…

Read Article

Military Spouse Appreciation Day

April 8, 2024

May 10 marks the celebration of Military Spouse Appreciation Day, a time to honor and recognize the immense contributions made by military spouses in supporting…

Read Article

Melanoma and Skin Cancer Awareness Month

April 8, 2024

Melanoma is an aggressive form of skin cancer. In addition to the skin, melanoma may also occur in mucous membranes – thin, moist layers of tissue that cover surfaces…

Read Article

Get Resources and Insights Straight To Your Inbox

Receive our monthly/bi-monthly newsletter filled with information about causes, nonprofit impact, and topics important for corporate social responsibility and employee engagement professionals, including disaster response, workplace giving, matching gifts, employee assistance funds, volunteering, scholarship award program management, grantmaking, and other philanthropic initiatives.

newsletter-mock