Sarah Ford | December 12, 2013

New York Times Puts the Spotlight on Progress in Marfan Research

New York Times Puts the Spotlight on Progress in Marfan ResearchIn the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than thirty years later, due to early diagnosis, new medications, and advances in surgery, the life expectancy for people with Marfan syndrome was in the 70s, nearing the life expectancy of the general population.

In the past decade, research has accelerated even faster, giving our community real hope for a medication that may prevent aortic enlargement, the life-threatening part of Marfan syndrome, and a potential blood test that could predict who is at risk for aortic problems. The December 3 issue of the New York Times put the focus on these recent research breakthroughs that offer our community hope.

>> CONTINUE READING

Source: The Marfan Foundation

Get Resources and Insights Straight To Your Inbox

Explore More Articles

The Time to Act is Now

March 7, 2025

The results of the 2024 National Assessment of Educational Progress (NAEP) are in, and the findings are, in a word, heartbreaking. This assessment serves as…

Read Article

Open Position:  Non-Profit Account Manager, Employee Assistance Funds & Scholarships (Remote – Full Time)

February 20, 2025

We are professional, agile, customer-centric and our goal is to inspire employees and organizations to support causes they care about. We help nonprofits fundraise unrestricted,…

Read Article
Humane World for Animals

EXCITING NEWS: Humane Society of The United States and Humane Society International is now HUMANE WORLD FOR ANIMALS

February 19, 2025

For over 70 years, Humane World for Animals, formerly called the Humane Society of the United States and Humane Society International, has worked around the globe to…

Read Article

Get Resources and Insights Straight To Your Inbox

Receive our monthly/bi-monthly newsletter filled with information about causes, nonprofit impact, and topics important for corporate social responsibility and employee engagement professionals, including disaster response, workplace giving, matching gifts, employee assistance funds, volunteering, scholarship award program management, grantmaking, and other philanthropic initiatives.

newsletter-mock