Sarah Ford | December 12, 2013

New York Times Puts the Spotlight on Progress in Marfan Research

New York Times Puts the Spotlight on Progress in Marfan ResearchIn the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than thirty years later, due to early diagnosis, new medications, and advances in surgery, the life expectancy for people with Marfan syndrome was in the 70s, nearing the life expectancy of the general population.

In the past decade, research has accelerated even faster, giving our community real hope for a medication that may prevent aortic enlargement, the life-threatening part of Marfan syndrome, and a potential blood test that could predict who is at risk for aortic problems. The December 3 issue of the New York Times put the focus on these recent research breakthroughs that offer our community hope.

>> CONTINUE READING

Source: The Marfan Foundation

Get Resources and Insights Straight To Your Inbox

Explore More Articles

2025 Holiday Giving Engage Donation Site_tech platform

Make the Holidays More Meaningful: Engage Your Team with Employee Giving Technology

September 12, 2025

The holiday season is a time for connection, gratitude, and giving back. For employers, it’s also an ideal moment to strengthen workplace culture, deepen employee…

Read Article
Launch a 2025 Holiday Giving Engage Donation Site

Launch a Turnkey Holiday Giving Campaign

September 12, 2025

Sign up by October 3, 2025 to launch your employee donation site in time for the holidays! Give employees a simple, meaningful way to make…

Read Article
Best Nonprofit to Work For

Data Processor & Customer Service Representative, Charitable Funds Management Solutions

August 27, 2025

Reporting Structure: Director, CFMS Term: October 2025 to February 2026 Schedule: Full-Time; Monday-Friday up to 37.5 hours per week. Rate: $20 per hour Overview of…

Read Article

Get Resources and Insights Straight To Your Inbox

Receive our monthly/bi-monthly newsletter filled with information about causes, nonprofit impact, and topics important for corporate social responsibility and employee engagement professionals, including disaster response, workplace giving, matching gifts, employee assistance funds, volunteering, scholarship award program management, grantmaking, and other philanthropic initiatives.

newsletter-mock