Sarah Ford | December 12, 2013
New York Times Puts the Spotlight on Progress in Marfan Research
In the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than thirty years later, due to early diagnosis, new medications, and advances in surgery, the life expectancy for people with Marfan syndrome was in the 70s, nearing the life expectancy of the general population.
In the past decade, research has accelerated even faster, giving our community real hope for a medication that may prevent aortic enlargement, the life-threatening part of Marfan syndrome, and a potential blood test that could predict who is at risk for aortic problems. The December 3 issue of the New York Times put the focus on these recent research breakthroughs that offer our community hope.
Source: The Marfan Foundation
Get Resources and Insights Straight To Your Inbox
Explore More Articles
Is Your Company Ready to Launch a Scholarship Program This Fall?
Here’s What You Need to Know Now is the ideal time for companies to partner with a scholarship administrator – here’s why and how to…
How Much Money Does Your Company’s Emergency Assistance Fund Actually Need?
Setting up an Employee Assistance Fund (EAF) is one of the most practical ways to support employees during times of crisis. One of the first…
Get Resources and Insights Straight To Your Inbox
Receive our monthly/bi-monthly newsletter filled with information about causes, nonprofit impact, and topics important for corporate social responsibility and employee engagement professionals, including disaster response, workplace giving, matching gifts, employee assistance funds, volunteering, scholarship award program management, grantmaking, and other philanthropic initiatives.