Sarah Ford | February 18, 2014
Join NORD and Show Support for the 30 Million Individuals Living With Rare Diseases on February 28
Source: Research America
February 28 is Rare Disease Day – a time to show support for the 30 million Americans, and millions more around the world, living with rare diseases.
Only a few hundred of the nearly 7,000 rare diseases have approved therapies. Many are not being studied at all by medical researchers.
Often, patients – or parents of patients – feel that nothing will be done unless they raise the money, recruit the researchers and fuel the search for their own lifesaving treatment. They find themselves in a race against time, since rare diseases tend to be serious and many are life-threatening.
To promote awareness of these and other rare disease challenges, the National Organization for Rare Disorders (NORD) hosts a national website where all patient advocates can find ways to show their support for Rare Disease Day.Â
You can help by getting involved in any of the following activities:
Get Resources and Insights Straight To Your Inbox
Explore More Articles
Emergency Assistance Fund Compliance: How to Stay IRS-Compliant While Maximizing Employee Impact
Why Emergency Assistance Funds Matter More Than Ever Financial insecurity remains a critical challenge for today’s workforce. Approximately 37% of Americans cannot afford an unexpected…
Open Position – Director of Marketing
Position: Director of Marketing Department: Business Development Reporting Structure: VP, Business Development Exemption Status: Exempt Location: Remote Overview of the Role: Reporting to, and partnering with, the VP,…
Celebrating Juneteenth and Continuing to Work in Solidarity for Racial Justice, Equality, and Equity
June 19 — also known as Juneteenth, or the nation’s second Independence Day — commemorates the end of slavery in Texas, and therefore the nation,…
Get Resources and Insights Straight To Your Inbox
Receive our monthly/bi-monthly newsletter filled with information about causes, nonprofit impact, and topics important for corporate social responsibility and employee engagement professionals, including disaster response, workplace giving, matching gifts, employee assistance funds, volunteering, scholarship award program management, grantmaking, and other philanthropic initiatives.
