Join NORD and Show Support for the 30 Million Individuals Living With Rare Diseases on February 28
By Sarah Ford on February 18, 2014
Source: Research America
February 28 is Rare Disease Day – a time to show support for the 30 million Americans, and millions more around the world, living with rare diseases.
Only a few hundred of the nearly 7,000 rare diseases have approved therapies. Many are not being studied at all by medical researchers.
Often, patients – or parents of patients – feel that nothing will be done unless they raise the money, recruit the researchers and fuel the search for their own lifesaving treatment. They find themselves in a race against time, since rare diseases tend to be serious and many are life-threatening.
To promote awareness of these and other rare disease challenges, the National Organization for Rare Disorders (NORD) hosts a national website where all patient advocates can find ways to show their support for Rare Disease Day.
You can help by getting involved in any of the following activities: