The Marfan Foundation


EIN: 52-1265361 | CFC Number: 11152

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Our Cause

The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.


The Marfan Foundation

Our Impact

As a result of our long-time commitment, we have turned the tide for Marfan research. We work with world-class scientists who are equally dedicated to our goal of creating a brighter future for people living with Marfan syndrome and related conditions. And, through our research grant program, we have grown the number of researchers studying Marfan syndrome and advancing research that improves diagnosis and treatment for the various body systems affected by Marfan syndrome.

In addition, the research we’ve championed has identified new conditions related to Marfan syndrome, which not only allows for better, more specific diagnoses, but also helps to pinpoint more effective treatments for Marfan syndrome and the related conditions.

Each year, The Marfan Foundation pursues the most innovative research by providing support through our research grant program. Through our grant program and other commitments, we funded $1.3 million in research in the past year.


*Ranges calculated below based on payroll deductions from 24-26 total paychecks in a year.

How Your Workplace Donations & Matching Gifts Make a Difference:

$100 - $250

Total Annual Pledge

($5 - $10 per pay period)


$250 - $650

Total Annual Pledge

($15 - $25 per pay period)


$780 - $1300

Total Annual Pledge

($30 - $50 per pay period)


Our Stories

World Health Day 2024

March 7, 2024

World Health Day takes place on April 7th each year, marking the anniversary of when the World Health Organization (WHO) was founded. WHO selects a…

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February is Marfan Awareness Month!

January 13, 2023

Marfan syndrome affects an estimated 1 in 5,000 people regardless of race, ethnicity, or gender, and experts estimate that nearly half the people who have Marfan…

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Child Health Day

September 21, 2022

First celebrated in 1929, Child Health Day was enacted by Congress as a day to raise awareness about the fundamental necessity for programs to protect and…

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