We are committed to improving the quality of life for those impacted by Epidermolysis Bullosa in the U.S. by developing and executing free programs and services, while funding the most innovative research directed at symptom relief and a systemic cure.
DEBRA of America
Epidermolysis Bullosa (EB) is a painful, disfiguring, disabling, sometimes fatal, genetic disorder that is characterized by skin so fragile any friction causes painful blisters and burn-like wounds. Present at birth, this disease affects people throughout their lifespan and sufferers may be mildly or severely affected. debra of America sponsors research for a cure and provides free programs and services for patients, their families, and medical professionals. A specialized Registered Nurse maintains a toll free hotline dedicated to patient health inquiries. The debra Care Conference is conducted at no cost to participants to attend. The Wound Care Distribution Program provides free emergency supplies of wound care dressings and non-prescription medication to registered patients who have difficulty acquiring medical supplies because of financial or logistical limitations.
Agency Name: debra of America
Official Name: Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
Address: 75 Broad St, Suite 300, New York, NY 10004
Web Site: www.debra.org