CMT Research Foundation
The CMT Research Foundation is the leading non-profit organization addressing scientific research into CMT.
WE PURSUE THE MOST INNOVATIVE TRANSLATIONAL RESEARCH AND ENSURE THAT IT RECEIVES PROPER FUNDING.
Our Scientific Advisory Board is continually seeking and evaluating proposals to find the most urgent and important projects to fund that show the most promise and will advance the development of treatments. We are relentless in pursuing those ideas and technologies that can lead to clinical trials and treatments for patients.
WE IDENTIFY THE GAPS IN RESEARCH AND CREATE STRATEGIES TO FIND SOLUTIONS.
With our vast network of scientific expertise, we have a deep understanding of the state of CMT research and what critical questions are unanswered. We assemble the leaders in each field to address the gaps, then we fund their work.
WE ARE TRANSPARENT.
We are transparent about our funding and the status of our projects. Investors will know how their donations are being deployed and the results they produce.
WE BUILD STRATEGIC PARTNERSHIPS.
Delivering treatments for CMT is expensive and one organization cannot fully fund the required research. We make smart investment decisions and work collaboratively with government, industry and other patient-led organizations.
WE ENCOURAGE DIALOGUE AND COLLABORATION AMONG THE SCIENTIFIC COMMUNITY.
Working with key researchers and other organizations on the path to a treatment will lead to stronger and faster outcomes.
WE HAVE GREAT HOPE, WHICH IS GROUNDED IN REALITY.
We are excited by the advances in genetics, cell technology and research into the causes of CMT. Although we understand the many challenges before us, we see a promising future for everyone living with CMT.
Because there are no treatments for CMT, we will not rest until we’ve achieved victory—a world in which everyone with CMT gets the necessary treatment and lives without disability.