Sarah Ford
New York Times Puts the Spotlight on Progress in Marfan Research
In the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than thirty years later, due to early diagnosis, new medications, and advances in surgery, the life expectancy for people with Marfan syndrome was in the 70s, nearing the life expectancy of the general population.
In the past decade, research has accelerated even faster, giving our community real hope for a medication that may prevent aortic enlargement, the life-threatening part of Marfan syndrome, and a potential blood test that could predict who is at risk for aortic problems. The December 3 issue of the New York Times put the focus on these recent research breakthroughs that offer our community hope.
Source: The Marfan Foundation
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